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  4. Resource List for Parents

Resource List for Parents

Overview

Whatever the nature of your loss, we are so sorry for what you and your family are going through. We hope these resources may provide some comfort and support in the days ahead.

Many of the books can be found on Amazon. Additional titles are available at the PLIDA bookstore and some of the other listed websites.

We also have a separate list of resources just for children/siblings.

Books

For parents facing a prenatal diagnosis of a life-limiting condition, or those facing difficult decisions about the care of their baby:

  • A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life is Expected to be Brief (Amy Kuebelbeck, Deborah Davis)
  • A Time to Decide, A Time to Heal (Molly Minnick, Kathleen Delp)
  • Difficult Decisions: For Families Whose Unborn Baby Has a Serious Problem (Patricia Fertel, Joy Johnson)
  • I Will Carry You: The Sacred Dance of Grief and Joy (Angie Smith)
  • Loving and Letting Go (Deborah Davis)
  • Loving Your Baby (Shari Morash)
  • Sufficient Grace (Kelly Gerken)
  • Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life (Amy Kuebelbeck)

For those experiencing the pain of miscarriage, stillbirth, or infant death:

  • After the Loss of Your Baby: For Teen Moms (Connie Nykiel)
  • Bearing the Unbearable: Love, Loss, and the Heartbreaking Path of Grief (Joanne Cacciatore, Jeffrey Rubin)
  • Carry You With Me (Alanna Knobben)
  • Empty Arms: Coping After Miscarriage, Stillbirth, and Infant Death (Sherokee Ilse)
  • Empty Arms: Hope and Support for Those Who Have Suffered a Miscarriage, Stillbirth, or Tubal Pregnancy (Pam Vredevelt)
  • Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Deborah L. Davis)
  • Expecting Sunshine: A Journey of Grief, Healing and Pregnancy After Loss (Alexis Marie Chute)
  • Grieving is Loving: Compassionate Words for Bearing the Unbearable (Joanne Cacciatore)
  • Healing Together: A Couple’s Guide (Suzanne B. Phillips, Dianne Kane)
  • Healing Your Grieving Heart After Stillbirth (Alan Wolfelt)
  • It’s Not “Just” A Heavy Period: The Miscarriage Handbook (Elizabeth Petrucelli)
  • I Had a Miscarriage by Jessica Zucker
  • Life Touches Life: A Mother’s Story of Stillbirth and Healing (Lorraine Ash, Christine Northrup)
  • Loved Baby: 31 Devotions Helping You Grieve and Cherish Your Child After Pregnancy Loss (Sarah Philpott)
  • Making Loving Memories (Mary Lou Eddy, Linda Raydo)
  • The Miscarriage Map by Sunita Osborn and Catherine Knepper
  • Miscarriage: A Shattered Dream (L.H. Burns, Sherokee Ilse)
  • Navigating the Unknown: An Immediate Guide When Experiencing the Loss of Your Baby (Amie Lands)
  • Poems for Wyatt: An Archive of Infant Loss and Recurrent Pregnancy Loss (Mandy Kelso)
  • Refining Fire: Finding Redemption Through Infant Loss (Grace Jones)
  • Remembering with Love: Messages of Hope for the First Year of Grieving and Beyond (Elizabeth Levang, Sherokee Ilse)
  • The Unspeakable Loss: How Do You Live After a Child Dies? (Nisha Zenoff)
  • This Little While (S.M. Johnson, Joy Johnson)
  • Three Minus One: Stories of Parents’ Love and Loss (Sean Hanish, Brooke Warner)
  • Too Soon a Memory: A Guide for Parents Suffering a Miscarriage (Pat Schwiebert)
  • Unexpecting: Real Talk on Pregnancy Loss (Rachel Lewis)
  • Unspeakable Losses: Healing from Miscarriage, Abortion, or other Pregnancy Loss (Kim Kluger-Bell)
  • Walking the Labyrinth of My Heart: A Journey of Pregnancy, Grief, and Newborn Death (Dianna Vagianos Armentrout)
  • When Hello Means Goodbye (Chef Paul Kirk, Pat Schwiebert)
  • Your Own Path Through Grief: A Workbook for Your Journey to Recovery (Jill A. Johnson-Young)

For fathers and grandparents:

  • A Grandparent’s Sorrow (Pat Schwiebert)
  • For Bereaved Grandparents (Margaret H. Gerner)
  • When Men Grieve: Why Men Grieve Differently and How You Can Help (Elizabeth Levang)
  • When a Man Faces Grief (James E. Miller, Thomas Golden)
  • Grieving Dads: To the Brink and Back (Kelly Farley, David DiCola)
  • Swallowed by a Snake: The Gift of the Masculine Side of Healing (Thomas Golden)

Rituals, Funerals, Memorial Services, Celebration of Life:

  • Building Memories, Planning a Meaningful Funeral (Doug Manning, Glenda Stansbury)
  • Goodbye My Precious Child (M.A. Comley)
  • Meaningful Moments: Ritual and Reflection When a Child Dies (Rana Limbo, Kathie Kobler)
  • Planning a Precious Goodbye: Following Miscarriage, Stillbirth, SIDS, and other Child Death (Sherokee Ilse, Susan Martinez)
  • We Hold You in Our Hearts: Condolence, Keepsake and Remembrance Guest Book for Funerals, Memorial & Funeral Services (Smiling Family Publications)

Websites: Grief and Bereavement Support

  • Arkansas Children’s Hospital Center for Good Mourning

  • Carry You With Me

  • Centering Corporation and Grief Digest Magazine

  • The Compassionate Friends

  • Empty Cradle

  • Grief Watch

  • MISS Foundation

  • Mommies Enduring Neonatal Death

  • Postpartum Support International

  • PUSH Empowered Pregnancy

  • Remembering Nicholas Foundation

    Emotional support, financial provision, education for change

  • Return to Zero H.O.P.E

  • Resources for Coping with Miscarriage

  • SHARE Pregnancy and Infant Loss Support

  • Sisters in Loss

  • Star Legacy Foundation (for stillbirth)

  • What’s Your Grief?

    Grief education, articles, sharing and support for many types of loss.

  • While We’re Waiting

    Faith-based retreats for bereaved parents

Diagnosis Support

Support groups and information about specific genetic diseases and birth defects.

  • Fetal Health Foundation

  • Medline Plus Genetics

  • National Institutes of Health

  • National Organization for Rare Diseases

  • Support Organization for Trisomy 18, 13 and Related Disorders

  • Luca Hill Acrania Foundation

  • Families for HoPE: Holoprosencephaly

  • HLHS Comfort Care

    For families choosing comfort care for hypoplastic left heart syndrome

Patient Blogs

  • A Heart Rearranged

  • Full Term Loss

Perinatal Palliative Care Support

  • Abel Speaks

    Supporting families who have chosen to carry a child with a life-limiting diagnosis.

  • Be Not Afraid

  • Carrying to Term

    Support for those facing a prenatal diagnosis of a life-limiting condition.

  • Courageous Parents Network

  • Perinatal Hospice and Palliative Care

  • String of Pearls

Keepsakes

  • My Angel’s Heartbeat Bear

    Stuffed animals that come with a 20 second recorder that will store a heartbeat

  • The Comfort Cub

    Weighted teddy bears

  • Held Your Whole Life

    Keepsake jewelry

  • Breastmilk jewelry

  • I Love You Still: A Memorial Baby Book

  • Little Footprints: A Special Baby’s Memory Book

  • Hugged with Our Hearts: A Memory Book

  • We Hold You In Our Hearts

    Memory book

  • AngelPics Project

    Free touch-ups to pictures of your baby

  • Faces of Angels

    Custom portraits

  • Now I Lay Me Down to Sleep

    Free professional photography

  • Audrey and McKena Foundation

    Free cremation boxes

  • Custom handmade pottery urns

    Custom handmade pottery urns

  • Bridget’s Cradles

    Handmade cradles, keepsake charms, prayer squares

  • Holy Sews

    Custom layettes for early preterm losses

  • Heaven’s Gain Ministries

    Pregnancy Loss Support, Caskets, Urns and Memorial Items

  • Mamies Poppy Plates

    Ceramic keepsake plates

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