The following resources are recommended for parents with a prenatal diagnosis of a life-limiting birth defect or condition, or those making difficult decisions about the care of their infant.
Books
- A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life is Expected to be Brief (Amy Kuebelbeck, Deborah Davis)
- Waiting with Gabriel (Amy Kuebelbeck)
- Sufficient Grace (Kelly Gerken)
- I Will Carry You: the Sacred Dance of Grief and Joy (Angie Smith)
- A Time to Decide, A Time to Heal (Molly Minnick, Kathleen Delp)
- Difficult Decisions (Centering Corporation)
- Loving and Letting Go (Centering Corporation)
- Loving Your Baby (Shari Morash)
Websites
- Perinatal Hospice & Palliative Care
- Be Not Afraid
- String of Pearls
- March of Dimes [Information on birth defects, grief, and loss]
Support groups/information about specific genetic diseases and birth defects
- Genetic Alliance
- Genetics Home Reference
- National Institutes of Health
- National Organization for Rare Disorders
- Support Organization for Trisomy 18, 13 and Related Disorders
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For those experiencing the pain of miscarriage, stillbirth, or infant death
Books
- Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Deborah L. Davis)
- Empty Arms: Coping After Miscarriage, Stillbirth, and Infant Death (Sherokee Ilse)
- Unspeakable Losses: Healing from Miscarriage, Abortion, or other Pregnancy Loss (Kim Kluger-Bell)
- Life Touches Life: A Mother’s Story of Stillbirth and Healing (Lorraine Ash, Christine Northrup)
- Three Minus One: Stories of Parents’ Love and Loss (Sean Hanish, Brooke Warner)
- This Little While
- Healing Your Grieving Heart After Stillbirth
- Miscarriage: A Shattered Dream
- When Hello Means Goodbye
- Too Soon a Memory
- After the Loss of Your Baby: for Teen Moms
[Many other titles and resources available]
MOVIE
- Return to Zero (Written and Directed by Sean Hanish)
WEBSITES
- Centering Corporation and Grief Digest Magazine
- Resolve Through Sharing
- Share Pregnancy & Infant Loss Support [Resources for early pregnancy loss, stillbirth, neonatal loss, children, grandparents, and memory making]
- The Compassionate Friends [Support resources for families after a child dies]
- Grief Watch
- A Place to Remember
- Faces of Loss, Faces of Hope [Puts a “face” on miscarriage, stillbirth and infant loss]
- MISS Foundation [A Community of Compassion and Hope for Grieving Families]
- Arkansas Children’s Hospital Center for Good Mourning
- Holy Sews [Mending Hearts One Stitch at a Time]
- Miscarriage Association of the United Kingdom
RELIGIOUS RESOURCES
- While We’re Waiting: Faith-Based Retreats for Bereaved Parents
- Spark of Life [Grief Recovery Retreats for Hope After Loss]
- Through This Valley A Faith-Based Conference to Equip Bereaved Parents
- Cards from Genesis and Joy
- Grief Share
PATIENT BLOGS
- From a Mom Who Lost Her Two Babies
- A Group of Moms United
- Miscarriage
- Loss of a Twin, Donation for Life
- Other Lists of Resources
MEMORY MAKING
- Little Footprints Memory Book (Centering Corporation)
- Making Loving Memories (Centering Corporation)
- Meaningful Moments: Ritual and Reflection When a Child Dies (Book by Rana Limbo, Kathie Kobler; available through Resolve Through Sharing online store)
- Mamie’s Poppy Plates (Keepsake plates made in Arkansas)
- Molly Bears (Weighted teddy bears for empty arms) or visit the Molly Bears Facebook Page
- The Comfort Cub (Weighted teddy bear)
- Now I Lay Me Down to Sleep (Photographers for stillbirth, neonatal death – free of charge) or visit the Now I Lay Me Down to Sleep Facebook Page
- Angel Babies Pics (Free touchups/restorations to pictures for bereaved families of the baby who has passed away – to remove medical cords or make anomalies look a bit more bearable, etc.) or visit the Baby Angel Pics Facebook page
- Brody’s Boxes (Free boxes for bereaved families to hold baby’s items)
- Bridget’s Cradles (Handmade cradles, keepsake charms, and prayer squares):
- Faces of Angels (Paintings that can be requested)
- Faith’s Melody (Heartfelt custom creations-necklaces/jewelry) or visit the Faith’s Melody Facebook page
- Forever Child (Custom jewelry for infant loss)
- Held Your Whole Life (Hand-stamped jewelry with baby’s name on it, free of charge)
- Kayce Jones Designs (Hand-stamped jewelry for infant or child loss)
- Lil Angels Hankies (Monogrammed hankies with the baby’s name, free of charge)
PATIENT BLOGS:
- From a Mom Who Lost Her Two Babies
- A Group of Moms United
- Miscarriage
- Loss of a Twin, Donation for Life
OTHER BEREAVEMENT RESOURCES:
Women’s Mental Health Clinic
501-526-8201
ANGELS Call Center
501-526-7425
Lactation
501-526-7425 or Outpatient 501-526-3558
On-Call Psychiatric Resident
501-686-7000
Patient Education
501-686-7791
Women and Infant Service Line Bereavement Coordinator
501-251-5996
FOR EMERGENCIES, PLEASE GO TO THE EMERGENCY ROOM OR CALL 911.