What is organ and tissue donation?
Organs are the main parts of your body that help you live. Examples are your heart, lungs, liver, kidneys, and pancreas.
Tissues are what make up your organs and hold them together. Examples are your skin, heart valves, bone, and veins.
Sometimes healthy organs and/or tissues can be donated from one person after they die, and put into another person’s body to help them live.
Sometimes organs or tissues cannot be used in another person, but may help doctors learn more about different illnesses and treatments.
What can my baby give?
A baby may be able to donate certain organs or tissues. Each baby and illness is different, and this may limit how much your baby can give. If you and your family are interested in donation, an Arkansas Regional Organ Recovery Agency (ARORA) coordinator will help decide what your baby can give.
How will the tissues/organs be used?
Organ transplants from baby donors often help other babies who were born with one or more organ problems.
- A new heart or kidney can be given to other sick children to replace their organs which are not working right.
- New heart valves can be given to help other children’s hearts work better. One heart valve donor can help up to 3 or 4 other children.
- If your baby cannot donate for transplant, he or she may be able to help others through donation for research. Doctors and scientists can learn how to help others with illnesses like your baby’s. They may also learn more about how different organs and tissues react to treatments. This can be another special way for your baby to help other people; ARORA can help decide if this is an option for your baby.
Will donating change our funeral plans?
No, it will not change your plans. The funeral home will still honor your family’s wishes.
How much will this cost my family?
Nothing. ARORA takes care of all donation costs.
How long with the surgery last?
The surgery takes 4 hours or less.
Will we be able to hold our baby after the recovery surgery?
Yes, you will be able to hold your baby after the surgery.
ARORA will clean your baby, and wrap him or her in warm blankets before they bring him or her back to you. They can also dress your baby if you have special clothes for him or her to wear. You can hold your baby for as long as you like, and you can still take pictures of your baby if you like.
Will donating organs/tissues affect an autopsy?
An autopsy is an exam to find out why a person died. It may also give us information that we did not or could not know before your baby was born. ARORA will work with other doctors to make sure that donation does not affect an autopsy.
Who will help with the donation process?
- ARORA handles organ/tissue donation for most of the state of Arkansas. They will keep you updated about your baby’s donation.
- A Family Services Coordinator will give you all the facts you need.
- An Organ Recovery Coordinator and the ARORA Medical Director will figure out what your baby can give to save the lives of other children.
- Your doctors and staff at the hospital will be kept up to date the whole time.
- Doctors and recovery staff will do the surgery.
What kind of support will we have?
You will have a Family Services Coordinator trained to help with grief and loss. He or she will answer your questions, and make sure you have all of the information that you need.
An After-Care Coordinator will provide bereavement support. He or she can also provide some information about those who received your baby’s organs or tissues.
We will also give you support once you are home:
- Support groups
- Letter-writing workshops
- Chances to meet other donor families
Can I know who my baby helps?
To respect each person’s privacy, we cannot share exactly who your baby helps. ARORA can tell you if they are a boy or girl, their age, and the state where the transplant took place; they can tell you if the family wants to share more information.
If you want to write a letter to the family, ARORA can help you.
How do I get more information?
Arkansas Regional Organ Recovery Agency (ARORA) will do all they can to respect your family’s wishes and help you with this process. You may also contact ARORA for more information at 1-800-727-6726; the family resource center is open 24 hours a day, 7 days a week.