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  1. UAMS Health
  2. Areas of Expertise
  3. Cancer Care
  4. Neurofibromatosis

Area of Expertise: Neurofibromatosis(Part of Cancer Care)

Neurofibromatosis is a genetic disorder of the nervous system. It mainly affects how nerve cells form and grow. It causes tumors to grow on nerves. You can get neurofibromatosis from your parents, or it can happen because of a mutation (change) in your genes. Once you have it, you can pass it along to your children. Usually the tumors are benign, but sometimes they can become cancerous.

There are three types of neurofibromatosis:

  • Type 1 (NF1) causes skin changes and deformed bones. It usually starts in childhood. Sometimes the symptoms are present at birth.
  • Type 2 (NF2) causes hearing loss, ringing in the ears, and poor balance. Symptoms often start in the teen years.
  • Schwannomatosis causes intense pain. It is the rarest type.

Doctors diagnose the different types based on the symptoms. Genetic testing is also used to diagnose NF1 and NF2. There is no cure. Treatment can help control symptoms. Depending on the type of disease and how serious it is, treatment may include surgery to remove tumors, radiation therapy, and medicines.

UAMS Open’s Adult Neurofibromatosis Clinic

The Children’s Tumor Foundation (CTF) and the University of Arkansas for Medical Sciences (UAMS) announced the opening of the first CTF-sponsored, fully multidisciplinary clinic dedicated to the care of adults with neurofibromatosis (NF) at the UAMS Winthrop P. Rockefeller Cancer Institute.

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Make NF Visible 2023

Arkansas Children's Neurofibromatosis Clinic

The Arkansas Children’s Neurofibromatosis Clinic provides a comprehensive evaluation of neurofibromatosis.

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The Children's Tumor Foundation

NF affects 1 in every 3,000 births, which is about 2.5 million people worldwide. Anyone can be born with it and it affects everyone differently.

Learn More

Contents

  • Conditions
  • Treatments & Procedures
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Related Conditions

UAMS Health providers care for a broad range of conditions, some of which may not be listed below.

  • Neurofibromatosis

Related Medical Treatments and Procedures

UAMS Health providers perform and prescribe a broad range of treatments and procedures, some of which may not be listed below.

  • Cancer Surgery
  • Radiation Therapy

Providers

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Joseph G. Chacko, M.D.

Joseph G. Chacko, M.D. Ophthalmologist

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J. D. Day, M.D.

J. D. Day, M.D. Neurosurgeon

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Noojan J. Kazemi, M.D.

Noojan J. Kazemi, M.D. Neurosurgeon

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Michail Mavros, M.D.

Michail Mavros, M.D. Surgical Oncologist

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Analiz Rodriguez, M.D., Ph.D.

Analiz Rodriguez, M.D., Ph.D. Neurosurgeon

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Erika Santos Horta, M.D.

Erika Santos Horta, M.D. Neurologist

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Gregory B. Sharp, M.D.

Gregory B. Sharp, M.D. Pediatric Neurologist

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Sami H. Uwaydat, M.D.

Sami H. Uwaydat, M.D. Ophthalmologist

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James C. Yuen, M.D.

James C. Yuen, M.D. Plastic Surgeon

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Locations

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Medical Oncology Clinic

Medical Oncology Clinic

449 Jack Stephens Drive
Winthrop P. Rockefeller Cancer Institute
Little Rock, AR 72205

Appointment Phone Numbers
501-296-1200
New Patients
501-686-8530
Returning Patients
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Related Areas of Expertise

  • Cancer Care

    The UAMS Winthrop P. Rockefeller Cancer Institute is Arkansas’ most comprehensive cancer treatment and research facility.

Make an Appointment

Request an appointment by contacting a clinic directly or by calling the UAMS Health appointment line at (501) 686-8000.

UAMS Health LogoUAMS HealthUniversity of Arkansas for Medical Sciences
Mailing Address: 4301 West Markham Street, Little Rock, AR 72205
Phone: (501) 686-7000
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