Cystic Fibrosis 2017-01-28T09:38:56+00:00

Cystic Fibrosis

Cystic fibrosis (CF) is one of the most common life-shortening genetic diseases in the United States. There is currently no cure for the disorder. While the life expectancy of those with cystic fibrosis is increasing, most people with the condition will only live to their mid-to-late 30s. UAMS offers the state’s only accredited Adult Cystic Fibrosis Center.

Cystic fibrosis is caused by a genetic mutation that causes mucus in the body to build up and affect many of the body’s organs, especially the lungs and pancreas. Cystic fibrosis involves the respiratory, digestive and reproductive systems. Symptoms for the disorder can range from mild to severe. Some of the more prevalent symptoms are:

  • Thick, sticky mucus
  • Coughing or wheezing
  • Recurrent lung (respiratory) infections
  • Delayed or poor growth
  • Enlargement or rounding of the fingers and toes

UAMS offers extensive care for this disease. In many ways, the care you receive will be similar to what you are accustomed to: regular check-ups, occasional lab work and hospitalization if necessary. You may begin to experience new symptoms as you grow older.

The treatment for cystic fibrosis varies based on the individual. This personalized treatment plan may include airway clearance, medications and nutritional support.

Appointments

The Cystic Fibrosis Clinic is by referral only. You can request an appointment online through myUAMShealth or you can call 501-686-8000. Please contact your primary care doctor or visit one of our doctors in the Center for Primary Care to obtain a referral.

What should I bring to the appointment?

For your first appointment, please bring a picture ID and your insurance card. The UAMS medical staff will also need information about any medications you’re taking, including over the counter medications. You should also bring any medical records you can provide.

For future appointments, please advise us of any changes in your insurance information or your medications.

How do I request a prescription refill or contact a nurse from the clinic?

Call the Clinic at 501-603-1400 and to have your prescription refilled or contact a nurse. Your pharmacist can also fax a prescription refill request to the Pulmonary Clinic at 501-603-1400. You will need to provide the name and phone number of the pharmacy filling the prescription. Please allow 2 business days for a refill.

If you originally filled your prescription at the UAMS Outpatient Pharmacy, you can also refill your prescription online.

Location/Directions

Location: 2nd floor of the Outpatient Center building
Parking: Available in Parking 3 at the corner of Cedar and Capitol. Valet parking is available in front of the Outpatient Center.

Directions:

  • Go to level 3A in the parking deck and follow signs to Elevator E
  • Take Elevator E to the 2nd floor